The information collected about your identity, health, behavior, and cognitive functioning will be analyzed for research purposes. The results from these analyses may be published in scientific journals and presented at research conferences. Publications and presentations will never disclose any personal identifiable information and your privacy will always remain protected.
Based on the needs of the scientific and medical communities, we may use your information to identify potential participants for clinical trials to test diagnostic tools and potential therapies for brain disorders. Brain Health Registry participants will only be contacted about participating in clinical trials that have already been reviewed and approved by the Institutional Review Board (also known as ethics boards). Once given the opportunity to participate in such a clinical trial, the choice to participate will always be yours.
Participation in the Brain Health Registry involves completing some cognitive assessments through commercial providers and some of these assessments require an internet connection to complete. Due to this, there may be increased confidentiality risks associated with study participation. However, no personal identifiable information will be provided to our commercial providers and we take every step possible to ensure the information you provide to the Brain Health Registry is kept safe and secure.