The information collected about your identity, health, behavior, and cognitive functioning will be analyzed for research purposes. The results from these analyses may be published in scientific journals and presented at research conferences. Publications and presentations will never disclose any personally identifiable information and your privacy will always remain protected.
Based on the needs of the scientific and medical communities, we may use your information to identify potential participants for other research studies. Brain Health Registry participants will only be contacted about participating in studies that have already been reviewed and approved by the Institutional Review Board (also known as ethics boards). Once given the opportunity to participate in other research studies, the choice to participate will always be yours.
Participation in the Brain Health Registry involves completing some brain challenges through commercial providers. Due to this, there may be increased confidentiality risks associated with study participation. However, no personal identifiable information will be provided to our commercial providers, and we take every step possible to ensure the information you provide to the Brain Health Registry is kept safe and secure.
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