FAQs
About the Brain Health Registry
- I'm interested in learning about the Brain Health Registry. Can you tell me more about the study?
- What is your association to University of California, San Francisco (UCSF)?
- Who can join the Brain Health Registry?
- How do I join?
- Why do I have to agree to an informed consent form?
- Can I get a copy of the consent form I signed?
What to Expect as a BHR Participant
- How can I return to the BHR portal to complete tasks?
- I am busy, on vacation, traveling, or don’t have access to a computer. What should I do if I am not able to complete my study visit at this time?
- What is expected of me?
- I cannot complete certain study tasks because of a disability or medical condition. Can I continue to participate in the Brain Health Registry?
- How much time does it take to participate? How often will I need to come back to complete online tasks?
- I don’t know how to use computers and/or I struggle with technology. Can I have someone assist me in completing study tasks in the Brain Health Registry?
Participation in Additional Research
- I received an email about joining another research study. How can I let you know that I am not interested?
- I received an email about another research study. What are the next steps?
- Why haven’t I received any information about participating in additional research?
- I’m interested in participating in additional research studies. How do I learn about these?
Study Partner
- How do I remove my study partner from my account?
- How can I change the person who I selected as my study partner?
- How do I change my study partner's email?
- What is a study partner? What is the Brain Health Registry’s Study Partner Portal?
- What if I don’t have a study partner?
- I'm concerned that my care recipient/study partner is a danger to him/herself or others. What should I do?
Withdrawing Participation
Your Information and Privacy
Pattern Location Challenge
Storyteller Task
- What is the Storyteller Task?
- Can someone help me do the Storyteller Task?
- I don’t have stable access to the internet. Can I do the Storyteller Task anyway?
- I don’t have my glasses with me. Can I do the Storyteller Task anyway?
- I don’t have my hearing aid(s) with me. Can I do the Storyteller Task anyway?
- I don’t have 10 minutes free to complete Storyteller right now. What should I do?
Technical Issues and Support
- What should I do if I am experiencing technical issues while trying to complete my study tasks?
- I am trying to complete a task, but I am not seeing any questions on my cell phone or tablet. What should I do to resolve this issue?
- I cannot move forward after I enter a number to answer a question. How can I fix this issue?
- How do I find my task list on my phone or tablet?
- My partner and I share an email address. Can we both use this email address to join the Brain Health Registry?
- I am having trouble logging into the Brain Health Registry with my username or password. What should I do?
Clinical Assessments Using an AI Voice Assistant (CAUV)
- CAUV: What is the Brain Health Registry CAUV Study?
- CAUV: Who can participate?
- CAUV: What does participation involve?
- CAUV: What is an AI assistant?
- CAUV: How do I complete the AI assistant interview?
- CAUV: What are the tips for a successful AI assistant session?
California Blood Biomarker Study (CABBS)
- CABBS: What is the purpose of this study?
- CABBS: What is expected of me as a participant?
- CABBS: How much time does it take to participate?
- CABBS: How can I withdraw from this study or what if I no longer want to be part of this study?
- CABBS: What are the risks of joining this study?
- CABBS: How will you keep my information confidential?